Chloe's Rally Against CCHS (Urgent)Click here to join Chloe's rally against Congenital Central Hypoventilation Syndrome: http://www.gofundme.com/chloemaedebari
Please spread the word, and if you can, donations would be greatly appreciated.
Posting this here from my facebook because trying to write something new will make me cry more. I wrote this at 9 A.M. this morning after getting very little sleep from nightmares and stress because of hearing the news about this.
I like to think I'm good with words at times, but with something like this I don't know what to say. So I'm going to try, and hopefully I won't start rambling or sobbing into my noodle and making people think I'm some sort of weirdo who can't handle spicy food. This is likely going to be long and if it is, I apologize in advance.
People who know me know that I have a sister who is dear to me, and my sister recently had a baby who is just as much of a bubbly handful of excitement and jelly as her mother was when